Riley has surgery schelduled for Oct 1st. He is having his adnoids removed as well as Functional Endoscoptic Sinus Surgery. (Fess) HOPEFULLY THIS WILL HELP WITH HIS SINUS PROBLEMS AS WELL As well as his horrible snoring! We are hoping this goes goes smoothly and makes him not dizzy anymore..... I am not freaked out I think because it is not brain surgery...... Is that bad??
School is going well riley is FINALLY starting to read a bit and Autumn is learning 3rd grade is a bit harder :) zackary is playing tennis and will be running cross country! He is a back up for the Varsity Team in Tennis which is HUGE for a fresman!! Love that kid!
Thats all for now must get to work!
Tuesday, September 14, 2010
Friday, July 16, 2010
and the results
Are good. He does have Chiari we just dont have to surgery right now. He is still dizzy but the neorosurgeoun want us to go see an Ears, Nose, and Throat dr. we do have an another MRI in December where again the boy will be sedated. so the MRI went well he was intubated to help his breathing, but he took it much better than Autumn did last year. So for now we will just have to try to get rid of the dizziness. He came home and ATE he was so hungry poor boy. Autumn did good and Poor Zackary was trying to work but his focus was on his brother. As soon as I texted him and told him that riley was in recovery he wanted to talk to Riley.
Hopefully my lil man will not have to have surgery but I trust our Neorosurgeon and am SOOOOOOOOOO Glad this is all over. Talk about being relieved.
I did call Autumn's orthopedic Dr to ask about her scans she had last year.
Side note is it bad we schelduled his MRI 2 weeks early since we have met our deductible Hmmm no I dont think so!
I will most likely go ahead with my procedure since our deductible should be met and really this has been an expensive year :) Thats all I am going to enjoy my night.
Now I can focus on getting my work done and going to visit some clients to get their business back :) YAY ME!
Hopefully my lil man will not have to have surgery but I trust our Neorosurgeon and am SOOOOOOOOOO Glad this is all over. Talk about being relieved.
I did call Autumn's orthopedic Dr to ask about her scans she had last year.
Side note is it bad we schelduled his MRI 2 weeks early since we have met our deductible Hmmm no I dont think so!
I will most likely go ahead with my procedure since our deductible should be met and really this has been an expensive year :) Thats all I am going to enjoy my night.
Now I can focus on getting my work done and going to visit some clients to get their business back :) YAY ME!
Thursday, July 15, 2010
Welllll
Tomorrow is the day. Have to be at the hospital at 7:45 AM and plan to be there 4 to 5 hours........ At least today went by quick. Stayed busy which is always good got to go and visit clients.
When I got home tonight Riley told me he was scared. I asked him of what and he told me the MRI and Surgery :( Thant makes me sad WHY WOULD GOD DO THIS TO HIM????????? Really really hate that this is happening. I hate that Zack has cried thinking his brother may have something major that might happen. It makes me litterally SICK to my stomache. I have only eaten a power bar today thats all. I am ready to wake up from this freaking nightmare really I am. Im done done done.
I miss my brother too. He is so funny he makes me laugh. I hate not having my family closer I think I need to go see my mommy. and sister soon....... You never know what may happen tomorrow literally........ As I sit here trying not to cry I am torn up inside. REALLY torn up. I will update tomorrow maybe.....
When I got home tonight Riley told me he was scared. I asked him of what and he told me the MRI and Surgery :( Thant makes me sad WHY WOULD GOD DO THIS TO HIM????????? Really really hate that this is happening. I hate that Zack has cried thinking his brother may have something major that might happen. It makes me litterally SICK to my stomache. I have only eaten a power bar today thats all. I am ready to wake up from this freaking nightmare really I am. Im done done done.
I miss my brother too. He is so funny he makes me laugh. I hate not having my family closer I think I need to go see my mommy. and sister soon....... You never know what may happen tomorrow literally........ As I sit here trying not to cry I am torn up inside. REALLY torn up. I will update tomorrow maybe.....
Tuesday, July 13, 2010
2 more days.........
only 2 more days, getting closer and closer..... The boy didnt want me to leave today when I dropped him off at the sitter he asked me to give him a BIGGGGGG HUGGGGG and I obliged!!! Watching him and Eli jump on the trampoline was greatness today!
I love being able to go to work and also work from home I have finally started to enjoy my backyard!
Thats all for now.... my emotions are still going crazy
I love being able to go to work and also work from home I have finally started to enjoy my backyard!
Thats all for now.... my emotions are still going crazy
Monday, July 12, 2010
3 more days..........
These may be the hardest next 3 days...... The unknown and non control that I feel SUCK BAD...... My lil man came up to me after dinner and told me he wanted me to hold him. I obviously picked him up and hugged him REALLY REALLY HARD...... Then the what ifs set in.... Sometimes I wish I didnt live in this reality and yet I do.
I had another HUGE breakdown last night. My husband and brother are my really safe place right now. I cried they listened and gave me a big hug and then my brother told me I was UGLY when I cry to make me laugh.
Good times!
I can only imagine the stress Riley must be feeling. And the stress the other kids are feeling. Its a scary crazy time for our family right now. The waiting after they take my baby back for the MRI aand then when we get to go wake him up from the sedation will feel like a million years. I remeber that feeling. This freaking post is so jumbled so good luck who ever reads it LOL!
Zack is working with staff from the Keller ISD doing a Science Camp and HE LOVES IT!
OK for some funny stuff now (a little background my boss and I share sitting services for her 2 kids and for my 2 youngest she lives like 2 miles from our office so I drop the kiddos off at her house in the mornings)
This morning everyone was tired we stayed up too late on Sunday night. The kids went to bed earlier but they were still tired and My Riley loves to sleep) Ok so after dropping Zack off at camp (late I might add) I took them to the sitters house. My boss was still at her house and I left. Here is the conversation that occurred between Riley
Riley: Hey Mrs. Rachelle I have had these clothes on all week.
Rachelle: Really?
Riley: Mrs Rachelle you know what else?
Rachelle What?
Riley: I have a big hole in my underwear and I have worn them all week. And I have holes in my shorts also but mom made me throw those away.
That KID is a HOOT!
I had another HUGE breakdown last night. My husband and brother are my really safe place right now. I cried they listened and gave me a big hug and then my brother told me I was UGLY when I cry to make me laugh.
Good times!
I can only imagine the stress Riley must be feeling. And the stress the other kids are feeling. Its a scary crazy time for our family right now. The waiting after they take my baby back for the MRI aand then when we get to go wake him up from the sedation will feel like a million years. I remeber that feeling. This freaking post is so jumbled so good luck who ever reads it LOL!
Zack is working with staff from the Keller ISD doing a Science Camp and HE LOVES IT!
OK for some funny stuff now (a little background my boss and I share sitting services for her 2 kids and for my 2 youngest she lives like 2 miles from our office so I drop the kiddos off at her house in the mornings)
This morning everyone was tired we stayed up too late on Sunday night. The kids went to bed earlier but they were still tired and My Riley loves to sleep) Ok so after dropping Zack off at camp (late I might add) I took them to the sitters house. My boss was still at her house and I left. Here is the conversation that occurred between Riley
Riley: Hey Mrs. Rachelle I have had these clothes on all week.
Rachelle: Really?
Riley: Mrs Rachelle you know what else?
Rachelle What?
Riley: I have a big hole in my underwear and I have worn them all week. And I have holes in my shorts also but mom made me throw those away.
That KID is a HOOT!
Saturday, July 10, 2010
So today
Eli and I were talking after I got home from the bank and buying really awesome Red Heels! Eli and I talked a bit he asked me how I was doing? I said I am doing OK but the next 6 days are gonna suck majorly. And as a DUMB DUMB person I pulled the photo book out (I have one for each kid that I have not kept up with very well :O) and we started to look at his pictures of him as a younger boy. And it is very hard on me to think of the WHAT IFS???? And I know that the what ifs are not good to dwell on, and yet I do it...... I HAVE to be STRONG for my little man and that is really hard!
On my way to take Zack to an appt I stopped by to see my awesome friend Kelly. I LOVE her and love that she hasnt and won't give up on me NO MATTER WHAT!
How blessed am I to have such an amazing few friends that no matter what would ever happen they would be by my side. I LOVE YOU FRIEND!
Brandi is another amazing friend I wish she was still my neighbor. I LOVE YOU TO FRIEND!
On the good side my brother is comming to see me today YAY! I totally miss him. Crazy how after 9 years of of us not talking and then us talking again its kinda like old times. I called him and told him I miss him and he called me the next day and told me he missed me! Its amazing what I have missed not talking to him. I start to cry just thinking about if he decides not to talk to me again but I WILL HUNT HIM DOWN AND BEAT HIM UP LOL!
Autumn is doing well with everything going on I think. We are trying to keep life normal for our family. She will go to the sitter on Friday just as normal.
Another craptastic thing is that we won't know what time we have to be at Cooks for his MRI until THURSDAY Really I would like to plan a little ya know.....
Anyways these are my feelings like it or not!
I know none of this is a suprise to God but still some warning could have been good ya know!
On my way to take Zack to an appt I stopped by to see my awesome friend Kelly. I LOVE her and love that she hasnt and won't give up on me NO MATTER WHAT!
How blessed am I to have such an amazing few friends that no matter what would ever happen they would be by my side. I LOVE YOU FRIEND!
Brandi is another amazing friend I wish she was still my neighbor. I LOVE YOU TO FRIEND!
On the good side my brother is comming to see me today YAY! I totally miss him. Crazy how after 9 years of of us not talking and then us talking again its kinda like old times. I called him and told him I miss him and he called me the next day and told me he missed me! Its amazing what I have missed not talking to him. I start to cry just thinking about if he decides not to talk to me again but I WILL HUNT HIM DOWN AND BEAT HIM UP LOL!
Autumn is doing well with everything going on I think. We are trying to keep life normal for our family. She will go to the sitter on Friday just as normal.
Another craptastic thing is that we won't know what time we have to be at Cooks for his MRI until THURSDAY Really I would like to plan a little ya know.....
Anyways these are my feelings like it or not!
I know none of this is a suprise to God but still some warning could have been good ya know!
Friday, July 9, 2010
I'm not gonna lie
I am VERYYYYYYYY SCARED! It has been such a freaking waiting game and now we are down to 6 days left. On the way to the sitters this morning Riley told me he was scared. It took everything in me to tell him it was gonna be fine. Inside I am scared and hoping for the best.
He has been extremmely tired the last week and that is scary UGHHHH I do not want to deal with this REALLY.
I am extremmelly worried that they will find something on riley's brain I am extremmelly scared that he will have to have surgery and I am extremmelly scared of the WHAT IFS!
I am not sure I am ready to hear the "news" from the neorosurgeon. REALLY WHY OUR FAMILY??? I know some have it much worse I understand that but still.
Here is what goes on in my mind Is it something I did wrong? Is it something I could have prevented? Is it me? Will my other babies have the same problem? (I haven't called Autumn's orthopedic dr caiuse I am too scared). What if he has to have surgery? What if his whole life is changed in a matter of a few hours? I don't want to think of seeing my lil man be put to sleep with anesthesia IT SUCKS......
And to top it off my other boy has had major conversations with his dad he wants to move up here. Where I am happy about that and the opportunities he has here I hate to see him hurt. It makes me sad that his dad is being a A**.
And The lil man has been asleep since about 7 PM (I hope he is not sick ugh)
goodnight we will keep everyone updated with whatever news we know!
He has been extremmely tired the last week and that is scary UGHHHH I do not want to deal with this REALLY.
I am extremmelly worried that they will find something on riley's brain I am extremmelly scared that he will have to have surgery and I am extremmelly scared of the WHAT IFS!
I am not sure I am ready to hear the "news" from the neorosurgeon. REALLY WHY OUR FAMILY??? I know some have it much worse I understand that but still.
Here is what goes on in my mind Is it something I did wrong? Is it something I could have prevented? Is it me? Will my other babies have the same problem? (I haven't called Autumn's orthopedic dr caiuse I am too scared). What if he has to have surgery? What if his whole life is changed in a matter of a few hours? I don't want to think of seeing my lil man be put to sleep with anesthesia IT SUCKS......
And to top it off my other boy has had major conversations with his dad he wants to move up here. Where I am happy about that and the opportunities he has here I hate to see him hurt. It makes me sad that his dad is being a A**.
And The lil man has been asleep since about 7 PM (I hope he is not sick ugh)
goodnight we will keep everyone updated with whatever news we know!
Monday, July 5, 2010
I have had an
AMAZING WEEK!! My brother came up to see me on Thursday We talked from 8 PM to 5Am... We havent talked like that in years I cant begin to tell you what it is like to try to start to build a relationship with my younger brother. Its been amazing. He came back up last night and hung out with us and will stay with us till tuesday. He knows now he cant get rid of me!
11 more days and we have our MRI to figure out what our next steps are for riley. I have a day surgery on the 14th.
Zack is here and we went and bungeed and other extreme stuff downtown dallas by the Speed zone! It rocked it was sooooooo much fun! I am so glad we are able to give our kids experiences that I never had or had the oppurtunity to do.
We postponed a big trip until Spring Break and then Zack and I will go on a big trip maybe to Padre Island or cali not sure yet. He is an amazing kid if I do say so myself!
fireworks tonight with the in laws and my brother we had a blast now off to bed I go!
11 more days and we have our MRI to figure out what our next steps are for riley. I have a day surgery on the 14th.
Zack is here and we went and bungeed and other extreme stuff downtown dallas by the Speed zone! It rocked it was sooooooo much fun! I am so glad we are able to give our kids experiences that I never had or had the oppurtunity to do.
We postponed a big trip until Spring Break and then Zack and I will go on a big trip maybe to Padre Island or cali not sure yet. He is an amazing kid if I do say so myself!
fireworks tonight with the in laws and my brother we had a blast now off to bed I go!
Monday, June 28, 2010
Back from Vacation and...
As soon as Autumn and I stepped outside Love Field airport we both looked at each other and went ICK this weather is gross! Where as were were glad to be home I LOVE CALIFORNIA weather! nothing like sitting on the beach and getting a sunburn! Oh and let me tell you I came back sunburned and Autumn came back more tan!
I went to the office when I got in so I could pick up some paperwork I needed and then went to get the Lil Man! When I walked in he said he wasn't excited I was home! NICE HUH! However I know he was! We went to eat and our kids didn't fight in fact they even sat next to each other BONUS! (Since they are both lefties sometimes it can be difficult for us (Eli and I) to sit next to them without us all bumping elbows :) That night Riley asked if he could cuddle with me and he climbed up on my lap and fell asleep! Same thing the next day he wanted to cuddle with me more.
To my knowledge they still haven't fought! I left on Sunday night for a surprise visit to my brother (He was really surprised) and got to visit for a few minutes then I proceeded to Amarillo. I am meeting prospective clients here and had a chat with a small bank here as well as a childcare center! And then I was to leave today to go to Lubbock but plans changed when I found out the hotel I am at is about to do a remodel. The Sales Manager was talking to me and told me she used to work in Insurance and Bonds also and I asked if I could get the name of her General Manager or whoever handles their bonds etc. So I have a meeting with the general Manager in the morning! So see me talking alot to strangers isn't always a bad thing :)
Then I get to go get my Zacky! YAY!! We (Zack and I) are going to do a mini staycation I think and go here http://www.gojump.com/
Yep that's as close as I can find for bungee so we are going to do it all! We may go Tubing down the river in New Braunfuls but I am not sure yet! It will be just him and I. I am excited that we are getting to spend quality one on one time with each of our kids. This will continue for us even though they may not always be huge vacations but it is a special bonding time for us all! Autumn has not had an attitude since right before we left and I have been relatively stress free!
Eli and I have talked a lot about stuff lately and the other night we were sitting on our deck and we started discussing how we are dealing with Riley's stuff differently. He asked me if I really thought about it all day every day and I told him yes EVERY SINGLE MOMENT I think of the What If's?? I know my kiddos could die at any moment but if it were a car crash or something it would be sudden ONE OF MY BIGGEST FEARS is that Riley will have to have surgery and the Dr will walk out with a Look on his face (kinda like they do on TV) and tell us that they lost our lil man. I can not even fathom how I would handle that and sadly I dream about that all the time. good thing is that since I am working that helps keep my mind busy for a portion of the day!
18 more days until our MRI and thankfully we get to see our neurosurgeon right after we are done!
Thats all for now!
I went to the office when I got in so I could pick up some paperwork I needed and then went to get the Lil Man! When I walked in he said he wasn't excited I was home! NICE HUH! However I know he was! We went to eat and our kids didn't fight in fact they even sat next to each other BONUS! (Since they are both lefties sometimes it can be difficult for us (Eli and I) to sit next to them without us all bumping elbows :) That night Riley asked if he could cuddle with me and he climbed up on my lap and fell asleep! Same thing the next day he wanted to cuddle with me more.
To my knowledge they still haven't fought! I left on Sunday night for a surprise visit to my brother (He was really surprised) and got to visit for a few minutes then I proceeded to Amarillo. I am meeting prospective clients here and had a chat with a small bank here as well as a childcare center! And then I was to leave today to go to Lubbock but plans changed when I found out the hotel I am at is about to do a remodel. The Sales Manager was talking to me and told me she used to work in Insurance and Bonds also and I asked if I could get the name of her General Manager or whoever handles their bonds etc. So I have a meeting with the general Manager in the morning! So see me talking alot to strangers isn't always a bad thing :)
Then I get to go get my Zacky! YAY!! We (Zack and I) are going to do a mini staycation I think and go here http://www.gojump.com/
Yep that's as close as I can find for bungee so we are going to do it all! We may go Tubing down the river in New Braunfuls but I am not sure yet! It will be just him and I. I am excited that we are getting to spend quality one on one time with each of our kids. This will continue for us even though they may not always be huge vacations but it is a special bonding time for us all! Autumn has not had an attitude since right before we left and I have been relatively stress free!
Eli and I have talked a lot about stuff lately and the other night we were sitting on our deck and we started discussing how we are dealing with Riley's stuff differently. He asked me if I really thought about it all day every day and I told him yes EVERY SINGLE MOMENT I think of the What If's?? I know my kiddos could die at any moment but if it were a car crash or something it would be sudden ONE OF MY BIGGEST FEARS is that Riley will have to have surgery and the Dr will walk out with a Look on his face (kinda like they do on TV) and tell us that they lost our lil man. I can not even fathom how I would handle that and sadly I dream about that all the time. good thing is that since I am working that helps keep my mind busy for a portion of the day!
18 more days until our MRI and thankfully we get to see our neurosurgeon right after we are done!
Thats all for now!
Thursday, June 24, 2010
Last Day in California
We went to the beach The newport and balboa one to be excact! At this beach it is huge saili boat and yacht beach area. The boats were amazing and there were tons of them!
Today we were at the beach for 6 hours and then came back to the hotel and the girl wanted to swim! She has been a fish this week! we had room service at the pool and then we had to come upstairs and get packed up for our 645 am flight (what was I thinking???) I am looking forward to seeing my boys but am not looking forward to the Texas weather. I love the beach and am so SUNBURNED but have loved every single moment! There is something calming about being in the fresh beach sand and right next to the water. I am soooo gald we didnt go to Florida considering the oil spill!
We did meet some people at the pool yesterday from Seattle and we started talking and I told them we were from Texas, so the grandfather of the kids there asked me if I loved George Bush where I replied I think all politicians are sleezy!
And the grandmother said I would have never thought you were from Texas because I don't have the Texas accent YAY!! And so when we left I said Y'all have a great rest of your vacation in my best Texan accent! The grandmother laughed!
So its 10:55 here and my flight is at the crack of dawn so off to be I go!
Next trip I am taking with my big boy I think we will go to New Braunfuls to float down the river!! I don't want him to feel left out and lets face it I love vacations HAHAHA!
Good night friend and feel free to ask questions about Riley I think writing (by recomendation of Dr Kahle) will help me and answer questions you may have!
I think even a scary thought is that the neorosurgeon in Austin told me I need to ask her orthopedic dr about chiari because Scolosis is a sign of the same thing. I am not sure I could handle that again but on Monday I will be calling and asking and praying that she will not have to undergo another MRI to find out......
Today we were at the beach for 6 hours and then came back to the hotel and the girl wanted to swim! She has been a fish this week! we had room service at the pool and then we had to come upstairs and get packed up for our 645 am flight (what was I thinking???) I am looking forward to seeing my boys but am not looking forward to the Texas weather. I love the beach and am so SUNBURNED but have loved every single moment! There is something calming about being in the fresh beach sand and right next to the water. I am soooo gald we didnt go to Florida considering the oil spill!
We did meet some people at the pool yesterday from Seattle and we started talking and I told them we were from Texas, so the grandfather of the kids there asked me if I loved George Bush where I replied I think all politicians are sleezy!
And the grandmother said I would have never thought you were from Texas because I don't have the Texas accent YAY!! And so when we left I said Y'all have a great rest of your vacation in my best Texan accent! The grandmother laughed!
So its 10:55 here and my flight is at the crack of dawn so off to be I go!
Next trip I am taking with my big boy I think we will go to New Braunfuls to float down the river!! I don't want him to feel left out and lets face it I love vacations HAHAHA!
Good night friend and feel free to ask questions about Riley I think writing (by recomendation of Dr Kahle) will help me and answer questions you may have!
I think even a scary thought is that the neorosurgeon in Austin told me I need to ask her orthopedic dr about chiari because Scolosis is a sign of the same thing. I am not sure I could handle that again but on Monday I will be calling and asking and praying that she will not have to undergo another MRI to find out......
in case you are curious
here are some pictures that kinda explain Chiari
If he has to have surgery the decompression is what will happen
Wednesday, June 23, 2010
Girl Vacation
When your world gets rocked and you start to think about all the things you want to do with your children and they may not be here the next day your view on life changes or at least mine did.
In May the Boys (Riley and Eli) took a trip to see the Space Shuttle launch in Orlando. So Autumn and I decided we needed to take a trip just the two of us so here we are in California. This has been the least stressful week I have had in about 4 months. Autumn has started to feel a bit left out I think and has had a bit of attitude and I think it is due to Riley's Drs appts., and the extra attention (not intentional ) he has gotten.
So we booked our trip the first day we were here we went to see the Hollywood sign and walk Hollywood Blvd. We had such a blast! We also visited Venice beach, WE LOVED IT! the street performers were amazing, the shopping is not as commercialized. The funny thing is that I saw some "BONGS" at the smoke shop and I smelt "POT" and thought wow I havent been around that smell in a long time but I forgot that Pot is legal in Cali! We came back to our hotel and went swimming at our pool where I started talking with some other guest and she mentioned that she had 2 more days on her park hopper tickets and we got a deal on them! YAY!!
So the on Monday we went to Disneyland and had the BEST TIME!! Loved it! stayed till 10 ish and came back and went swimming again!
Tuesday was beach day again this time to the Santa Monica beach OH MY it was so gourgeous beautiful sand, awesome amusement park, awesome pier. There is something about seeing your child run to the waves and have such a big grin on her face! We then had to go shopping! I mean lets face it someone has to do it!
WEdnesday we went back to Disney for the day to finish the rides we didnt make the first day! We also got to watch the most amazing light and color show with animated characters. She is on her bed sleeping so we can gear up for another beach tomorrow!!! YAY!!
It is amazing memories we have made on this trip I think it will be an annual thing for just the 2 of us to get away and enjoy just being girls!!
Thanks Eli for allowing the girl and I to come to California and thanks to Rachelle (My boss) for taking over my responsibilities so I could come!
Oh and for the record it is a NICVE 77 degrees here !!
In May the Boys (Riley and Eli) took a trip to see the Space Shuttle launch in Orlando. So Autumn and I decided we needed to take a trip just the two of us so here we are in California. This has been the least stressful week I have had in about 4 months. Autumn has started to feel a bit left out I think and has had a bit of attitude and I think it is due to Riley's Drs appts., and the extra attention (not intentional ) he has gotten.
So we booked our trip the first day we were here we went to see the Hollywood sign and walk Hollywood Blvd. We had such a blast! We also visited Venice beach, WE LOVED IT! the street performers were amazing, the shopping is not as commercialized. The funny thing is that I saw some "BONGS" at the smoke shop and I smelt "POT" and thought wow I havent been around that smell in a long time but I forgot that Pot is legal in Cali! We came back to our hotel and went swimming at our pool where I started talking with some other guest and she mentioned that she had 2 more days on her park hopper tickets and we got a deal on them! YAY!!
So the on Monday we went to Disneyland and had the BEST TIME!! Loved it! stayed till 10 ish and came back and went swimming again!
Tuesday was beach day again this time to the Santa Monica beach OH MY it was so gourgeous beautiful sand, awesome amusement park, awesome pier. There is something about seeing your child run to the waves and have such a big grin on her face! We then had to go shopping! I mean lets face it someone has to do it!
WEdnesday we went back to Disney for the day to finish the rides we didnt make the first day! We also got to watch the most amazing light and color show with animated characters. She is on her bed sleeping so we can gear up for another beach tomorrow!!! YAY!!
It is amazing memories we have made on this trip I think it will be an annual thing for just the 2 of us to get away and enjoy just being girls!!
Thanks Eli for allowing the girl and I to come to California and thanks to Rachelle (My boss) for taking over my responsibilities so I could come!
Oh and for the record it is a NICVE 77 degrees here !!
Tuesday, June 22, 2010
Riley
So I am writing this to keep everyone informed!
Right before Spring Break Riley told us he was dizzy, we thought well maybe he needed to eat a bit more, or that it was just something small going on. We knew he wasnt faking because we saw him have to hold on to something during one of his extremmely dizzy spells. So after a few weeks of him telling us he was dizzy we took him in to his peditrician. She said his reflexes look good but she wanted to order a CT Scan just to see what was going on and also gave us 2 strong sinus meds for him to take. So that Friday we went in to get a CT Scan. That evening around 4:30 I got a phone call from his Dr she told us his sinuses were a mess and ordered more meds for him. We joked that weekend that we paid 1000.00 to find out he was full of snot. So on Monday I went to work the kids went to school just like normal. I joked with my boss that I would get a call from my peditrician around 4. And I did around 2:45 on the way to get the kids from school. The first words out of her mouth were "DONT FREAK OUT" I asked her to hold on so I could pull over. The next 5 minute phone call was most likely the hardest phone call I have ever had. She tld me Riley had a condition on his brain called Chiari which is basically his cerrebellum is growing out of the base of his brain and we need to see a NEOROSURGEON. So I cried and freaked out and called Eli and told him. Then I had to compose myself so I could pick up the kids. Riley's teacher knew something was wrong with me and asked me and I just started crying on her shoulder. The next week consisted of calling and trying to get into a neurosurgeon who would think it would have such a wait. I did find one in Austin and we called a friend and got a flight to Austin for a good price. (thanks Jeffersons) The neurosurgeon there told us that we would need an MRI and see if he would need surgery. So we found out a lot about the condition in that visit but before we decided to move forward we wanted to get a 2nd opionion. So we then had an appointment in ft Worth with a Dr. He said basically the same thing which was reassuring and we schelduled and MRI which is on July 16th. To give you a perspective on the time frame of our wait we found out Riley had this condition on April 12th. So needless to say our lives have kinda been in a world of emotions. The boys took a vacation to see the Space Shuttle launch because well you never know if we will have our little man the whole Brain Surgery kills me. And to top it off he will have to have a MRI every YEAR of the rest of his life :( So hopefully this blog will help keep everyone updated on not only how Riley is but how we 9the rest of the family) are holding up. Right at this moment Autumn and I are in Los Angeles on vacation (she has been feeling very left out since Riley is getting more attention because of his stuff) so thats where our lives are at the moment.
My world has been ROCKED to the Core. I am MAD AT GOD, cant understand why this is happening to us and yes I know God is in control and loves my child more than me and I also am aware that it could be much worse. However this is MY LITTLE MAN and I DO NOT EVER WANT TO LOOSE HIM. I know Drs are very skilled but anytime you talk about brain surgery it scares the crap out of me and even more when it is my child. I know that the rest of our friends and our family are praying hard for us and we appreciate that much.
We will have to put Riley under for the MRI and I do not like this at all It was so hard on Autumn when we had to do it last year, AND IT SUCKS. Our family haas a new reality now and I am trying hard to deal with it! Not always making the right decisions on how to deal with it, I went out with friends and had drinks which did push those feeling to the side for a bit. Now I am trying to just deal. Hopefully his MRI will show that we just have to watch the Chiari.
I will keep you all updated
Love you all
Right before Spring Break Riley told us he was dizzy, we thought well maybe he needed to eat a bit more, or that it was just something small going on. We knew he wasnt faking because we saw him have to hold on to something during one of his extremmely dizzy spells. So after a few weeks of him telling us he was dizzy we took him in to his peditrician. She said his reflexes look good but she wanted to order a CT Scan just to see what was going on and also gave us 2 strong sinus meds for him to take. So that Friday we went in to get a CT Scan. That evening around 4:30 I got a phone call from his Dr she told us his sinuses were a mess and ordered more meds for him. We joked that weekend that we paid 1000.00 to find out he was full of snot. So on Monday I went to work the kids went to school just like normal. I joked with my boss that I would get a call from my peditrician around 4. And I did around 2:45 on the way to get the kids from school. The first words out of her mouth were "DONT FREAK OUT" I asked her to hold on so I could pull over. The next 5 minute phone call was most likely the hardest phone call I have ever had. She tld me Riley had a condition on his brain called Chiari which is basically his cerrebellum is growing out of the base of his brain and we need to see a NEOROSURGEON. So I cried and freaked out and called Eli and told him. Then I had to compose myself so I could pick up the kids. Riley's teacher knew something was wrong with me and asked me and I just started crying on her shoulder. The next week consisted of calling and trying to get into a neurosurgeon who would think it would have such a wait. I did find one in Austin and we called a friend and got a flight to Austin for a good price. (thanks Jeffersons) The neurosurgeon there told us that we would need an MRI and see if he would need surgery. So we found out a lot about the condition in that visit but before we decided to move forward we wanted to get a 2nd opionion. So we then had an appointment in ft Worth with a Dr. He said basically the same thing which was reassuring and we schelduled and MRI which is on July 16th. To give you a perspective on the time frame of our wait we found out Riley had this condition on April 12th. So needless to say our lives have kinda been in a world of emotions. The boys took a vacation to see the Space Shuttle launch because well you never know if we will have our little man the whole Brain Surgery kills me. And to top it off he will have to have a MRI every YEAR of the rest of his life :( So hopefully this blog will help keep everyone updated on not only how Riley is but how we 9the rest of the family) are holding up. Right at this moment Autumn and I are in Los Angeles on vacation (she has been feeling very left out since Riley is getting more attention because of his stuff) so thats where our lives are at the moment.
My world has been ROCKED to the Core. I am MAD AT GOD, cant understand why this is happening to us and yes I know God is in control and loves my child more than me and I also am aware that it could be much worse. However this is MY LITTLE MAN and I DO NOT EVER WANT TO LOOSE HIM. I know Drs are very skilled but anytime you talk about brain surgery it scares the crap out of me and even more when it is my child. I know that the rest of our friends and our family are praying hard for us and we appreciate that much.
We will have to put Riley under for the MRI and I do not like this at all It was so hard on Autumn when we had to do it last year, AND IT SUCKS. Our family haas a new reality now and I am trying hard to deal with it! Not always making the right decisions on how to deal with it, I went out with friends and had drinks which did push those feeling to the side for a bit. Now I am trying to just deal. Hopefully his MRI will show that we just have to watch the Chiari.
I will keep you all updated
Love you all
Wednesday, January 20, 2010
Fog
As I was driving this morning to work I was encountered with the heavy fog. All of a sudden God brought to my mind that I am often foggy in my walk with God. I trust that I will get through the morning fog without being in an accident but when I can't see where God is taking me I try to go a different way to maybe avoid the "fog". It was such an eye opener for me this morning. I pray that through the fog, rain, and sun that my eyes stay fixed upon my Christ.
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