Riley

So I am writing this to keep everyone informed!

Right before Spring Break Riley told us he was dizzy, we thought well maybe he needed to eat a bit more, or that it was just something small going on. We knew he wasnt faking because we saw him have to hold on to something during one of his extremmely dizzy spells. So after a few weeks of him telling us he was dizzy we took him in to his peditrician. She said his reflexes look good but she wanted to order a CT Scan just to see what was going on and also gave us 2 strong sinus meds for him to take. So that Friday we went in to get a CT Scan. That evening around 4:30 I got a phone call from his Dr she told us his sinuses were a mess and ordered more meds for him. We joked that weekend that we paid 1000.00 to find out he was full of snot. So on Monday I went to work the kids went to school just like normal. I joked with my boss that I would get a call from my peditrician around 4. And I did around 2:45 on the way to get the kids from school. The first words out of her mouth were "DONT FREAK OUT" I asked her to hold on so I could pull over. The next 5 minute phone call was most likely the hardest phone call I have ever had. She tld me Riley had a condition on his brain called Chiari which is basically his cerrebellum is growing out of the base of his brain and we need to see a NEOROSURGEON. So I cried and freaked out and called Eli and told him. Then I had to compose myself so I could pick up the kids. Riley's teacher knew something was wrong with me and asked me and I just started crying on her shoulder. The next week consisted of calling and trying to get into a neurosurgeon who would think it would have such a wait. I did find one in Austin and we called a friend and got a flight to Austin for a good price. (thanks Jeffersons) The neurosurgeon there told us that we would need an MRI and see if he would need surgery. So we found out a lot about the condition in that visit but before we decided to move forward we wanted to get a 2nd opionion. So we then had an appointment in ft Worth with a Dr. He said basically the same thing which was reassuring and we schelduled and MRI which is on July 16th. To give you a perspective on the time frame of our wait we found out Riley had this condition on April 12th. So needless to say our lives have kinda been in a world of emotions. The boys took a vacation to see the Space Shuttle launch because well you never know if we will have our little man the whole Brain Surgery kills me. And to top it off he will have to have a MRI every YEAR of the rest of his life :( So hopefully this blog will help keep everyone updated on not only how Riley is but how we 9the rest of the family) are holding up. Right at this moment Autumn and I are in Los Angeles on vacation (she has been feeling very left out since Riley is getting more attention because of his stuff) so thats where our lives are at the moment.


My world has been ROCKED to the Core. I am MAD AT GOD, cant understand why this is happening to us and yes I know God is in control and loves my child more than me and I also am aware that it could be much worse. However this is MY LITTLE MAN and I DO NOT EVER WANT TO LOOSE HIM. I know Drs are very skilled but anytime you talk about brain surgery it scares the crap out of me and even more when it is my child. I know that the rest of our friends and our family are praying hard for us and we appreciate that much.

We will have to put Riley under for the MRI and I do not like this at all It was so hard on Autumn when we had to do it last year, AND IT SUCKS. Our family haas a new reality now and I am trying hard to deal with it! Not always making the right decisions on how to deal with it, I went out with friends and had drinks which did push those feeling to the side for a bit. Now I am trying to just deal. Hopefully his MRI will show that we just have to watch the Chiari.

I will keep you all updated

Love you all